PCP appointment tomorrow, Disability declaration

Sorry for the long pause between posts. Been busy, but mostly with good things. We've been trying to get Jacob's birthday party all planned, and just tonight we're thinking of switching the theme from jungle to trains. Part of this is due to Jake's sudden fascination with trains. Part of it's due to not being able to decide what type of "jungle" food to serve... Thai, Filipino, Vietnamese, South American? Too many places with jungles have great food, so it was too hard to decide. Now I'm scratching my head and wondering, "What's train food?" So we might be returning the jungle props that've been loaned to us. Now if anyone has train props we can borrow for the party, please contact us and stand by...
Jacob's birthday is tomorrow, April 11. But the party's April 22, and that happens to be Denise's birthday, so we've got to rush. Trivia: Denise and Jacob were both born on Easter of their respective years of 1973 and 2004. I don't think either of them will have their birthdays fall on Easter for several more decades. Anyway, Denise didn't want to do anything to take away from Jacob's birthday bliss. So I'm getting the ball rolling about planning a reception for Denise instead of a birthday party, probably in June after school winds down. Check back on the blog for some details. That'd be great for you to meet her and see the results of all the hard work, pulling & tugging you've done on her behalf since last July.
As far as medical things go, Denise is doing well without her feeding tube & PICC lines. She has an appointment with her primary care physician (PCP) tomorrow. This is the doctor that will see her regularly from here on out. The infectious disease doctor thinks it's safe to check in with her on a monthly basis for a while. Denise's vision & mobility problems are such that we're trying to get her declared disabled. Our city doesn't have a Dial-a-Ride, but we've started the paperwork for her to be accepted for Access Services (disability transportation). The paperwork for all this makes us cross our eyes sometimes. Wouldn't life be great without all the red tape? Great, that is, except for all the people that owe their livelihoods to the existence of red tape.

Posted in: